The human Jenga: rare condition causes girl to collapse daily

‘I am just like jenga’ – the girl who collapses every day as her bones give way – Published in Daily Mail August 12th

Screen Shot 2014-08-20 at 19.28.22This is a story about a 15 year old, Shannon, who suffers from a rare condition which means her bones always dislocate causing her to fall into a heap on the floor.

Five years ago, Shannon was standing still in her bedroom when she just fell to the floor. She was rushed to hospital having dislocated her knee.

Over the next two years, Shannon dislocated the same knee eight times and even an operation didn’t stop it. Doctor’s originally thought it was growing pains, but Shannon was finally diagnosed in 2012 with Ehlers-Danlos Syndrome (EDS) – a condition which affects the collagen in her body, the connective tissues in the body, causing her bones to frequently dislocate.

Ever since her diagnosis, Shannon has dislocated her spine, both shoulders, her ankles, her neck and many other parts including her fingers and wrists.

Shannon is currently home-schooled as she had a tough time studying at school with EDS. As the condition is unknown by many, her ‘friends’ would never believe there was anything wrong with her questioning why one day she was in a wheelchair and the next she was walking.

But Shannon is hoping to get a place in secondary school in September to take her GCSEs – she is determined to live as much of a normal life as possible.

Shannon’s story appeared on the Daily Mail.





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